uni-leipzig-open-access/json/fpsyg.2023.1125545

{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2023,4,21]],"date-time":"2023-04-21T06:31:21Z","timestamp":1682058681777},"reference-count":125,"publisher":"Frontiers Media SA","license":[{"start":{"date-parts":[[2023,4,20]],"date-time":"2023-04-20T00:00:00Z","timestamp":1681948800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100005972","name":"Deutsche Krebshilfe","doi-asserted-by":"publisher"}],"content-domain":{"domain":["frontiersin.org"],"crossmark-restriction":true},"short-container-title":["Front. Psychol."],"abstract":"<jats:sec><jats:title>Background<\/jats:title><jats:p>Despite remarkable progress, cancer remains a life-threatening disease for millions of people worldwide, also resulting in significant psychosocial limitations. High-quality, comprehensive cancer care requires patient and family involvement and the provision of needs-based, targeted psychosocial services. Although progress has been made in understanding the occurrence of mental comorbidity and psychosocial distress in cancer patients, comparatively little is known about the course of psychological comorbidity and psychosocial distress in early survivorship among patients and their families. We therefore aim to estimate the prevalence of mental disorders according to the DSM-5, psychosocial distress, perceived needs for psychosocial support and utilization of psychosocial support offers in newly diagnosed cancer patients and their relatives, taking into account potential contributing biopsychosocial factors for the occurrence of psychological comorbidity.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods\/design<\/jats:title><jats:p>This study follows a prospective multi-center observational cohort design across four measurement time points: within 2 months after cancer diagnosis (t1), and in the follow-up period at 6 months (t2), at 12 months (t3), and at 18 months (t4) after t1. Patients older than 18 years who have a confirmed initial diagnosis of a malignant solid tumor and are scheduled for cancer treatment at one of the participating cancer centers are eligible for study participation. Relatives of eligible patients are also eligible for study participation if they are older than 18 years. Patients are interviewed using the Structured Clinical Interview for DSM-5 Disorders (SCID-5-CV). In addition, patients and relatives receive a set of validated questionnaires at each measurement time point, covering comorbid conditions and functional performance, perceived psychological distress and quality of life, partnership aspects and social relationships, supportive care needs and use of psychosocial support services, health literacy, and health behavior and meaning in life.<\/jats:p><\/jats:sec><jats:sec><jats:title>Discussion<\/jats:title><jats:p>This prospective multi-center observational cohort study has a major focus on increasing quality of care and quality of life in cancer survivors through providing rigorous longitudinal data for the development and implementation of target group-specific psychosocial support services.<\/jats:p><\/jats:sec><jats:sec><jats:title>Trial registration<\/jats:title><jats:p>NCT04620564, date of registration 9\/11\/2020; DKG OnkoZert: Registrier-No.: ST-U134, date of registration 5\/11\/2021.<\/jats:p><\/jats:sec>","DOI":"10.3389\/fpsyg.2023.1125545","type":"journal-article","created":{"date-parts":[[2023,4,20]],"date-time":"2023-04-20T14:01:56Z","timestamp":1681999316000},"update-policy":"http:\/\/dx.doi.org\/10.3389\/crossmark-policy","source":"Crossref","is-referenced-by-count":0,"title":["Prevalence of mental disorders, psychosocial distress, and perceived need for psychosocial support in cancer patients and their relatives stratified by biopsychosocial factors: rationale, study design, and methods of a prospective multi-center observational cohort study (LUPE study)"],"prefix":"10.3389","volume":"14","author":[{"given":"Anja","family":"Mehnert-Theuerkauf","sequence":"first","affiliation":[]},{"given":"Julia Marie","family":"Hufeld","sequence":"additional","affiliation":[]},{"given":"Peter","family":"Esser","sequence":"additional","affiliation":[]},{"given":"Ute","family":"Goerling","sequence":"additional","affiliation":[]},{"given":"Myriel","family":"Hermann","sequence":"additional","affiliation":[]},{"given":"Tanja","family":"Zimmermann","sequence":"additional","affiliation":[]},{"given":"Hannah","family":"Reuter","sequence":"additional","affiliation":[]},{"given":"Jochen","family":"Ernst","sequence":"additional","affiliation":[]}],"member":"1965","published-online":{"date-parts":[[2023,4,20]]},"reference":[{"key":"B1","doi-asserted-by":"publisher","first-page":"365","DOI":"10.1093\/jnci\/85.5.365","article-title":"The European organization for research and treatment of cancer QLQ-C30: A quality-of-life instrument for use in international clinical trials in oncology.","volume":"85","author":"Aaronson","year":"1993","journal-title":"J. Natl. Cancer Inst."},{"key":"B2","doi-asserted-by":"publisher","first-page":"595","DOI":"10.1111\/j.1743-6109.2007.00749.x","article-title":"Psychometric validation of a sexual quality of life questionnaire for use in men with premature ejaculation or erectile dysfunction.","volume":"5","author":"Abraham","year":"2008","journal-title":"J. Sex. Med."},{"key":"B3","doi-asserted-by":"publisher","year":"2013","journal-title":"Diagnostic and statistical manual of mental disorders: DSM-5\u2122.","DOI":"10.1176\/appi.books.9780890425596"},{"key":"B4","doi-asserted-by":"publisher","first-page":"623","DOI":"10.5498\/wjp.v12.i4.623","article-title":"Psychiatric comorbidities in cancer survivors across tumor subtypes: A systematic review.","volume":"12","author":"Bach","year":"2022","journal-title":"World J. Psychiatry"},{"key":"B5","doi-asserted-by":"publisher","first-page":"738","DOI":"10.1037\/h0077132","article-title":"Dropping out of treatment: A critical review.","volume":"85","author":"Baekeland","year":"1975","journal-title":"Psychol. Bull."},{"key":"B6","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpsychores.2021.110706","article-title":"Social inequalities in health anxiety: A systematic review and meta-analysis.","volume":"153","author":"Barbek","year":"2022","journal-title":"J. Psychosom. Res."},{"key":"B7","doi-asserted-by":"publisher","DOI":"10.1186\/1477-7525-3-51","article-title":"Subjective assessments of comorbidity correlate with quality of life health outcomes: Initial validation of a comorbidity assessment instrument.","volume":"3","author":"Bayliss","year":"2005","journal-title":"Health Qual. Life Outcomes"},{"key":"B8","doi-asserted-by":"publisher","first-page":"550","DOI":"10.1016\/j.jclinepi.2008.05.002","article-title":"Seniors\u2019 self-reported multimorbidity captured biopsychosocial factors not incorporated into two other data-based morbidity measures.","volume":"62","author":"Bayliss","year":"2009","journal-title":"J. Clin. Epidemiol."},{"key":"B9","article-title":"SCID-5-PD: Strukturiertes klinisches interview f\u00fcr DSM-5 - pers\u00f6nlichkeitsst\u00f6rungen: Deutsche bearbeitung des","author":"Beesdo-Baum","year":"2019","journal-title":"Structured clinical interview for DSM-5 - personality disorders"},{"key":"B10","doi-asserted-by":"publisher","first-page":"828","DOI":"10.1001\/jama.1994.03520100096046","article-title":"DSM-IV: Diagnostic and statistical manual of mental disorders.","volume":"10","author":"Bell","year":"1994","journal-title":"JAMA"},{"key":"B11","author":"Bodenmann","year":"2008","journal-title":"[Dyadic coping inventory. Manual]."},{"key":"B12","year":"2022","journal-title":"Projektgruppe nationale dekade gegen Krebs dekade gegen Krebs."},{"key":"B13","doi-asserted-by":"publisher","first-page":"3161","DOI":"10.1200\/JCO.20.00722","article-title":"Chronic comorbidities among survivors of adolescent and young adult cancer.","volume":"38","author":"Chao","year":"2020","journal-title":"J. Clin. Oncol."},{"key":"B14","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0184268","article-title":"The direct healthcare costs associated with psychological distress and major depression: A population-based cohort study in Ontario, Canada.","volume":"12","author":"Chiu","year":"2017","journal-title":"PLoS One"},{"key":"B15","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyg.2022.962634","article-title":"The role of caregivers in the clinical pathway of patients newly diagnosed with breast and prostate cancer: A study protocol.","volume":"13","author":"Cincidda","year":"2022","journal-title":"Front. Psychol."},{"key":"B16","doi-asserted-by":"publisher","first-page":"603","DOI":"10.1007\/s12020-021-02786-y","article-title":"Distress, anxiety, depression and unmet needs in thyroid cancer survivors: A longitudinal study.","volume":"74","author":"Dionisi-Vici","year":"2021","journal-title":"Endocrine"},{"key":"B17","author":"Dlugosch","year":"1995","journal-title":"[Health behavior questionnaire (FEG)]."},{"key":"B18","doi-asserted-by":"publisher","first-page":"241","DOI":"10.1002\/pon.3430","article-title":"Validation of the distress thermometer worldwide: State of the science.","volume":"23","author":"Donovan","year":"2014","journal-title":"Psychooncology"},{"key":"B19","doi-asserted-by":"publisher","first-page":"183","DOI":"10.1055\/s-0034-1398523","article-title":"[German version of the social impact scale (SIS-D)\u2013Pilot testing of an instrument for measuring experienced stigmatization in a sample of cancer patients].","volume":"65","author":"Eichhorn","year":"2015","journal-title":"Psychother. Psychosom. Med. Psychol."},{"key":"B20","doi-asserted-by":"publisher","first-page":"1330","DOI":"10.1007\/s00103-005-1168-5","article-title":"[Measuring health-related quality of life with the SF-8. Normal sample of the German population].","volume":"48","author":"Ellert","year":"2005","journal-title":"Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz"},{"key":"B21","doi-asserted-by":"publisher","first-page":"655","DOI":"10.1080\/10428194.2016.1194983","article-title":"Dyadic coping of patients with hematologic malignancies and their partners and its relation to quality of life - a longitudinal study.","volume":"58","author":"Ernst","year":"2017","journal-title":"Leuk. Lymphoma"},{"key":"B22","doi-asserted-by":"publisher","DOI":"10.1186\/s12955-021-01784-y","article-title":"Development and preliminary psychometric investigation of the German satisfaction with comprehensive cancer care (SCCC) questionnaire.","volume":"19","author":"Esser","year":"2021","journal-title":"Health Qual. Life Outcomes"},{"key":"B23","year":"2021","journal-title":"Europe\u2019s beating cancer plan."},{"key":"B24","doi-asserted-by":"publisher","first-page":"782","DOI":"10.1200\/JCO.2011.40.8922","article-title":"Effects of psycho-oncologic interventions on emotional distress and quality of life in adult patients with cancer: Systematic review and meta-analysis.","volume":"31","author":"Faller","year":"2013","journal-title":"J. Clin. Oncol."},{"key":"B25","doi-asserted-by":"publisher","first-page":"24","DOI":"10.1016\/j.jpsychores.2015.12.004","article-title":"Perceived need for psychosocial support depending on emotional distress and mental comorbidity in men and women with cancer.","volume":"81","author":"Faller","year":"2016","journal-title":"J. Psychosom. Res."},{"key":"B26","doi-asserted-by":"publisher","first-page":"356","DOI":"10.1016\/j.jpainsymman.2007.05.007","article-title":"The schedule for meaning in life evaluation (SMiLE): Validation of a new instrument for meaning-in-life research.","volume":"35","author":"Fegg","year":"2008","journal-title":"J. Pain Symptom Manage."},{"key":"B27","doi-asserted-by":"publisher","first-page":"50","DOI":"10.2307\/2676360","article-title":"The dimensionality of stigma: A comparison of its impact on the self of persons with HIV\/AIDS and cancer.","volume":"41","author":"Fife","year":"2000","journal-title":"J. Health Soc. Behav."},{"key":"B28","author":"First","year":"2015","journal-title":"Structured clinical interview for DSM-5-research version (SCID-5 for DSM-5, research version; SCID-5-RV)."},{"key":"B29","doi-asserted-by":"publisher","author":"Fleiss","year":"2003","journal-title":"Statistical methods for rates and proportions.","DOI":"10.1002\/0471445428"},{"key":"B30","doi-asserted-by":"publisher","first-page":"229","DOI":"10.1007\/s00127-003-0627-2","article-title":"Social inequalities and the common mental disorders: A systematic review of the evidence.","volume":"38","author":"Fryers","year":"2003","journal-title":"Soc. Psychiatry Psychiatr. Epidemiol."},{"key":"B31","doi-asserted-by":"publisher","first-page":"54","DOI":"10.1002\/pon.3562","article-title":"Family caregivers\u2019 distress levels related to quality of life, burden, and preparedness.","volume":"24","author":"Fujinami","year":"2015","journal-title":"Psychooncology"},{"key":"B32","doi-asserted-by":"publisher","DOI":"10.1111\/ecc.13587","article-title":"The quality of life of regional and remote cancer caregivers in Australia.","volume":"31","author":"Goodwin","year":"2022","journal-title":"Eur. J. Cancer Care"},{"key":"B33","doi-asserted-by":"publisher","first-page":"55","DOI":"10.1016\/j.jgo.2018.05.011","article-title":"Polypharmacy, limited activity, fatigue and insomnia are the most frequent symptoms and impairments in older hematological cancer survivors (70+): Findings from a register-based study on physical and mental health.","volume":"10","author":"G\u00f6tze","year":"2019","journal-title":"J. Geriatr. Oncol."},{"key":"B34","doi-asserted-by":"publisher","first-page":"712","DOI":"10.1007\/s11764-018-0708-6","article-title":"Comorbid conditions and health-related quality of life in long-term cancer survivors-associations with demographic and medical characteristics.","volume":"12","author":"G\u00f6tze","year":"2018","journal-title":"J. Cancer Surviv."},{"key":"B35","doi-asserted-by":"publisher","first-page":"1","DOI":"10.1037\/0033-2909.134.1.1","article-title":"Distress in couples coping with cancer: A meta-analysis and critical review of role and gender effects.","volume":"134","author":"Hagedoorn","year":"2008","journal-title":"Psychol. Bull."},{"key":"B36","doi-asserted-by":"publisher","first-page":"189","DOI":"10.1016\/j.jpsychores.2009.04.013","article-title":"Depression, anxiety, and somatoform disorders: Vague or distinct categories in primary care? Results from a large cross-sectional study.","volume":"67","author":"Hanel","year":"2009","journal-title":"J. Psychosom. Res."},{"key":"B37","doi-asserted-by":"publisher","first-page":"46","DOI":"10.1016\/j.ejca.2016.11.017","article-title":"The risk of being depressed is significantly higher in cancer patients than in the general population: Prevalence and severity of depressive symptoms across major cancer types.","volume":"72","author":"Hartung","year":"2017","journal-title":"Eur. J. Cancer"},{"key":"B38","doi-asserted-by":"publisher","first-page":"64","DOI":"10.1037\/1082-989X.2.1.64","article-title":"Application of random-effects pattern-mixture models for missing data in longitudinal studies.","volume":"1","author":"Hedeker","year":"1997","journal-title":"Psychol. Methods"},{"key":"B39","doi-asserted-by":"publisher","first-page":"746","DOI":"10.1080\/0284186X.2017.1287945","article-title":"A longitudinal assessment of psychological distress after oesophageal cancer surgery.","volume":"56","author":"Hellstadius","year":"2017","journal-title":"Acta Oncol."},{"key":"B40","doi-asserted-by":"publisher","first-page":"505","DOI":"10.1016\/j.jpsychores.2005.02.007","article-title":"Fear of progression in chronic diseases: Psychometric properties of the fear of progression questionnaire.","volume":"58","author":"Herschbach","year":"2005","journal-title":"J. Psychosom. Res."},{"key":"B41","doi-asserted-by":"publisher","first-page":"31","DOI":"10.1159\/000254903","article-title":"Group psychotherapy of dysfunctional fear of progression in patients with chronic arthritis or cancer.","volume":"79","author":"Herschbach","year":"2010","journal-title":"Psychother. Psychosom."},{"key":"B42","doi-asserted-by":"publisher","first-page":"703","DOI":"10.1002\/pon.5321","article-title":"Distress in cancer patients: Who are the main groups at risk?","volume":"29","author":"Herschbach","year":"2020","journal-title":"Psychooncology"},{"key":"B43","doi-asserted-by":"publisher","first-page":"338","DOI":"10.1016\/j.jad.2016.12.012","article-title":"Psychometric evaluation of the generalized anxiety disorder screener GAD-7, based on a large German general population sample.","volume":"210","author":"Hinz","year":"2017","journal-title":"J. Affect. Disord."},{"key":"B44","doi-asserted-by":"publisher","first-page":"277","DOI":"10.1007\/s11136-018-2014-1","article-title":"Normative values for the distress thermometer (DT) and the emotion thermometers (ET), derived from a German general population sample.","volume":"28","author":"Hinz","year":"2019","journal-title":"Qual. Life Res."},{"key":"B45","year":"2012","journal-title":"Comparative report on health literacy in eight EU-member states. The European health literacy survey."},{"key":"B46","doi-asserted-by":"publisher","first-page":"129","DOI":"10.1055\/a-0620-0002","article-title":"[Evaluation of the German short version of the \u201cnew sexual satisfaction scale\u201d (NSSS-SD) in a representative sample].","volume":"69","author":"Hoy","year":"2019","journal-title":"Psychother. Psychosom. Med. Psychol."},{"key":"B47","doi-asserted-by":"publisher","DOI":"10.1001\/jamanetworkopen.2022.49560","article-title":"Risk of psychiatric disorders among spouses of patients with cancer in Denmark and Sweden.","volume":"6","author":"Hu","year":"2023","journal-title":"JAMA Netw. Open"},{"key":"B48","doi-asserted-by":"publisher","first-page":"655","DOI":"10.1177\/0164027504268574","article-title":"A short scale for measuring loneliness in large surveys: Results from two population-based studies.","volume":"26","author":"Hughes","year":"2004","journal-title":"Res. Aging"},{"key":"B49","article-title":"The clinical evaluation of chemotherapeutic agents in cancer","author":"Karnofsky","year":"1949","journal-title":"Evaluation of chemotherapeutic agents"},{"key":"B50","doi-asserted-by":"publisher","first-page":"551","DOI":"10.1016\/j.genhosppsych.2013.04.006","article-title":"Standardization of the depression screener patient health questionnaire (PHQ-9) in the general population.","volume":"35","author":"Kocalevent","year":"2013","journal-title":"Gen. Hosp. Psychiatry"},{"key":"B51","doi-asserted-by":"publisher","first-page":"606","DOI":"10.1046\/j.1525-1497.2001.016009606.x","article-title":"The PHQ-9: Validity of a brief depression severity measure.","volume":"16","author":"Kroenke","year":"2001","journal-title":"J. Gen. Intern. Med."},{"key":"B52","doi-asserted-by":"publisher","first-page":"289","DOI":"10.1159\/000446991","article-title":"Twelve-month and lifetime prevalence of mental disorders in cancer patients.","volume":"85","author":"Kuhnt","year":"2016","journal-title":"Psychother. Psychosom."},{"key":"B53","doi-asserted-by":"publisher","first-page":"113","DOI":"10.1055\/s-0042-100732","article-title":"[The development of quality standards for the psychosocial outpatient care of cancer patients - results of a Delphi survey].","volume":"80","author":"Kuhnt","year":"2018","journal-title":"Gesundheitswesen"},{"key":"B54","doi-asserted-by":"publisher","first-page":"2035","DOI":"10.1016\/j.pec.2017.05.014","article-title":"The TRIO framework: Conceptual insights into family caregiver involvement and influence throughout cancer treatment decision-making.","volume":"100","author":"Laidsaar-Powell","year":"2017","journal-title":"Patient Educ. Couns."},{"key":"B55","doi-asserted-by":"publisher","first-page":"2831","DOI":"10.1002\/pon.3361","article-title":"The evolution of psychological distress trajectories in women diagnosed with advanced breast cancer: A longitudinal study.","volume":"22","author":"Lam","year":"2013","journal-title":"Psychooncology"},{"key":"B56","doi-asserted-by":"publisher","first-page":"224","DOI":"10.1136\/bmjspcare-2012-000226","article-title":"The unmet needs of partners and caregivers of adults diagnosed with cancer: A systematic review.","volume":"2","author":"Lambert","year":"2012","journal-title":"BMJ Support. Palliat. Care"},{"key":"B57","doi-asserted-by":"publisher","first-page":"631","DOI":"10.1007\/s00103-012-1663-4","article-title":"Messung des sozio\u00f6konomischen status in der studie zur gesundheit erwachsener in deutschland (DEGS1).","volume":"56","author":"Lampert","year":"2013","journal-title":"Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz"},{"key":"B58","doi-asserted-by":"publisher","first-page":"201","DOI":"10.1024\/1421-0185\/a000024","article-title":"Psychometrics of the dyadic coping inventory in three language groups.","volume":"69","author":"Ledermann","year":"2010","journal-title":"Swiss J. Psychol."},{"key":"B59","doi-asserted-by":"publisher","first-page":"2415","DOI":"10.1007\/s00520-011-1351-1","article-title":"Psychometric properties of the German version of the short-form supportive care needs survey questionnaire (SCNS-SF34-G).","volume":"20","author":"Lehmann","year":"2012","journal-title":"Support. Care Cancer"},{"key":"B60","year":"2015","journal-title":"LimeSurvey."},{"key":"B61","doi-asserted-by":"publisher","first-page":"343","DOI":"10.1016\/j.jad.2012.03.025","article-title":"Anxiety and depression after cancer diagnosis: Prevalence rates by cancer type, gender, and age.","volume":"141","author":"Linden","year":"2012","journal-title":"J. Affect. Disord."},{"key":"B62","doi-asserted-by":"publisher","first-page":"1112","DOI":"10.1080\/01621459.1995.10476615","article-title":"Modeling the drop-out mechanism in repeated-measures studies.","volume":"90","author":"Little","year":"1995","journal-title":"J. Am. Stat. Assoc."},{"key":"B63","doi-asserted-by":"publisher","DOI":"10.3390\/healthcare10040661","article-title":"Trajectories of anxiety and depression symptoms over five years since breast cancer diagnosis: Results of the NEON-BC prospective study","volume":"10","author":"Lopes","year":"2022","journal-title":"Healthcare (Basel)"},{"key":"B64","doi-asserted-by":"publisher","first-page":"266","DOI":"10.1097\/MLR.0b013e318160d093","article-title":"Validation and standardization of the generalized anxiety disorder screener (GAD-7) in the general population.","volume":"46","author":"L\u00f6we","year":"2008","journal-title":"Med. Care"},{"key":"B65","doi-asserted-by":"publisher","first-page":"386","DOI":"10.1159\/000080393","article-title":"Diagnosing ICD-10 depressive episodes: Superior criterion validity of the patient health questionnaire.","volume":"73","author":"L\u00f6we","year":"2004","journal-title":"Psychother. Psychosom."},{"key":"B66","doi-asserted-by":"publisher","author":"Mackenbach","year":"2019","journal-title":"Health inequalities: Persistence and change in modern welfare states.","DOI":"10.1093\/oso\/9780198831419.001.0001"},{"key":"B67","doi-asserted-by":"publisher","first-page":"2468","DOI":"10.1056\/NEJMsa0707519","article-title":"Socioeconomic inequalities in health in 22 European countries.","volume":"358","author":"Mackenbach","year":"2008","journal-title":"N. Engl. J. Med."},{"key":"B68","doi-asserted-by":"publisher","first-page":"819","DOI":"10.1016\/S0140-6736(19)32035-5","article-title":"Winners take all.","volume":"394","author":"Marmot","year":"2019","journal-title":"Lancet"},{"key":"B69","doi-asserted-by":"publisher","first-page":"631","DOI":"10.1200\/JCO.2012.46.6854","article-title":"American society of clinical oncology statement: Achieving high-quality cancer survivorship care.","volume":"31","author":"McCabe","year":"2013","journal-title":"J. Clin. Oncol."},{"key":"B70","doi-asserted-by":"publisher","first-page":"3540","DOI":"10.1200\/JCO.2014.56.0086","article-title":"Four-week prevalence of mental disorders in patients with cancer across major tumor entities.","volume":"32","author":"Mehnert","year":"2014","journal-title":"J. Clin. Oncol."},{"key":"B71","doi-asserted-by":"publisher","first-page":"75","DOI":"10.1002\/pon.4464","article-title":"One in two cancer patients is significantly distressed: Prevalence and indicators of distress.","volume":"27","author":"Mehnert","year":"2018","journal-title":"Psychooncology"},{"key":"B72","doi-asserted-by":"publisher","first-page":"274","DOI":"10.13109\/zptm.2006.52.3.274","article-title":"[Fear of progression in breast cancer patients\u2013validation of the short form of the fear of progression questionnaire (FoP-Q-SF)].","volume":"52","author":"Mehnert","year":"","journal-title":"Z. Psychosom. Med. Psychother."},{"key":"B73","doi-asserted-by":"publisher","first-page":"213","DOI":"10.1024\/1661-4747.54.3.213","article-title":"Die deutsche version des NCCN distress-thermometers.","volume":"54","author":"Mehnert","year":"","journal-title":"Z. Psychiatr. Psychol. Psychother."},{"key":"B74","doi-asserted-by":"publisher","first-page":"383","DOI":"10.1016\/j.jpsychores.2007.12.005","article-title":"Psychological comorbidity and health-related quality of life and its association with awareness, utilization, and need for psychosocial support in a cancer register-based sample of long-term breast cancer survivors.","volume":"64","author":"Mehnert","year":"2008","journal-title":"J. Psychosom. Res."},{"key":"B75","doi-asserted-by":"publisher","first-page":"176","DOI":"10.1026\/1616-3443.36.3.176","article-title":"[Measuring meaning-based coping and life attitudes. Psychometric evaluation of the German version of the life attitude profile-revised (LAP-R) in a representative sample of breast cancer patient].","volume":"36","author":"Mehnert","year":"2007","journal-title":"Z. Klin. Psychol. Psychother."},{"key":"B76","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.328.7443.794","article-title":"Risk factors, prevalence, and treatment of anxiety and depressive disorders in Pakistan: Systematic review.","volume":"328","author":"Mirza","year":"2004","journal-title":"BMJ"},{"key":"B77","doi-asserted-by":"publisher","first-page":"125","DOI":"10.1002\/pon.1523","article-title":"Can the distress thermometer be improved by additional mood domains? Part I. Initial validation of the emotion thermometers tool.","volume":"19","author":"Mitchell","year":"","journal-title":"Psychooncology"},{"key":"B78","doi-asserted-by":"publisher","first-page":"134","DOI":"10.1002\/pon.1557","article-title":"Can the distress thermometer be improved by additional mood domains? Part II. What is the optimal combination of emotion thermometers?","volume":"19","author":"Mitchell","year":"","journal-title":"Psychooncology"},{"key":"B79","doi-asserted-by":"publisher","first-page":"160","DOI":"10.1016\/S1470-2045(11)70002-X","article-title":"Prevalence of depression, anxiety, and adjustment disorder in oncological, haematological, and palliative-care settings: A meta-analysis of 94 interview-based studies.","volume":"12","author":"Mitchell","year":"2011","journal-title":"Lancet Oncol."},{"key":"B80","doi-asserted-by":"publisher","first-page":"337","DOI":"10.1016\/j.jad.2014.06.021","article-title":"Risk factors for the onset of panic and generalised anxiety disorders in the general adult population: A systematic review of cohort studies.","volume":"168","author":"Moreno-Peral","year":"2014","journal-title":"J. Affect. Disord."},{"key":"B81","doi-asserted-by":"publisher","DOI":"10.1016\/j.jval.2018.09.2326","article-title":"PRM208 - Validation of the English version of the adherence assessment questionnaire (AAQ).","volume":"21","author":"Mueller","year":"2018","journal-title":"Value Health"},{"key":"B82","doi-asserted-by":"publisher","first-page":"321","DOI":"10.1016\/S2215-0366(18)30061-0","article-title":"Does depression treatment improve the survival of depressed patients with cancer? A long-term follow-up of participants in the SMaRT oncology-2 and 3 trials.","volume":"5","author":"Mulick","year":"2018","journal-title":"Lancet Psychiatry"},{"key":"B83","doi-asserted-by":"publisher","first-page":"1120","DOI":"10.1093\/jnci\/djz089","article-title":"Developing a quality of cancer survivorship care framework: Implications for clinical care, research and policy.","volume":"111","author":"Nekhlyudov","year":"2019","journal-title":"J. Natl. Cancer Inst."},{"key":"B84","doi-asserted-by":"publisher","first-page":"857","DOI":"10.1002\/(SICI)1097-0258(19980430)17:8<857::AID-SIM777>3.0.CO;2-E","article-title":"Interval estimation for the difference between independent proportions: Comparison of eleven methods.","volume":"17","author":"Newcombe","year":"1998","journal-title":"Stat. Med."},{"key":"B85","doi-asserted-by":"publisher","DOI":"10.1186\/s12885-019-6181-4","article-title":"Depression and anxiety among people living with and beyond cancer: A growing clinical and research priority.","volume":"19","author":"Niedzwiedz","year":"2019","journal-title":"BMC Cancer"},{"key":"B86","doi-asserted-by":"publisher","first-page":"141","DOI":"10.2307\/351302","article-title":"Measuring marital quality: A critical look at the dependent variable.","volume":"45","author":"Norton","year":"1983","journal-title":"J. Marriage Fam."},{"key":"B87","first-page":"29","article-title":"[The German adaptation of the Illness-specific social support scale and the test statistical evaluation on the basis of patients undergoing bone marrow transplantation with the Illness-specific social support scale (ISSS)].","volume":"12","author":"Ramm","year":"2003","journal-title":"Z. Med. Psychol."},{"key":"B88","author":"Reker","year":"1992","journal-title":"Manual of the life attitude profile-revised (LAP-R)."},{"key":"B89","doi-asserted-by":"publisher","first-page":"746","DOI":"10.1038\/s41571-019-0249-6","article-title":"Comorbid chronic diseases and cancer diagnosis: Disease-specific effects and underlying mechanisms.","volume":"16","author":"Renzi","year":"2019","journal-title":"Nat. Rev. Clin. Oncol."},{"key":"B90","article-title":"Development of a contextual social support measure for use with arthritis population","author":"Revenson","year":"1990","journal-title":"Paper presented at the 1990 convention of the arthritis health professionals association"},{"key":"B91","doi-asserted-by":"publisher","first-page":"185","DOI":"10.1055\/s-0032-1304994","article-title":"[Outpatient psycho-oncological care for family members and patients: Access, psychological distress and supportive care needs].","volume":"62","author":"Rosenberger","year":"2012","journal-title":"Psychother. Psychosom. Med. Psychol."},{"key":"B92","doi-asserted-by":"publisher","first-page":"1904","DOI":"10.1002\/(SICI)1097-0142(19980515)82:10<1904::AID-CNCR13>3.0.CO;2-X","article-title":"Rapid screening for psychologic distress in men with prostate carcinoma: A pilot study.","volume":"82","author":"Roth","year":"1998","journal-title":"Cancer"},{"key":"B93","author":"R\u00f6thlin","year":"2013","journal-title":"[The health literacy of 15-year-old adolescents in Austria]."},{"key":"B94","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.e4933","article-title":"Association between psychological distress and mortality: Individual participant pooled analysis of 10 prospective cohort studies.","volume":"345","author":"Russ","year":"2012","journal-title":"BMJ"},{"key":"B95","doi-asserted-by":"publisher","first-page":"472","DOI":"10.1037\/0022-3514.39.3.472","article-title":"The revised UCLA loneliness scale: Concurrent and discriminant validity evidence.","volume":"39","author":"Russell","year":"1980","journal-title":"J. Pers. Soc. Psychol."},{"key":"B96","doi-asserted-by":"publisher","first-page":"226","DOI":"10.1002\/(SICI)1097-0142(20000101)88:1<226::AID-CNCR30>3.0.CO;2-P","article-title":"The unmet supportive care needs of patients with cancer. Supportive care review group.","volume":"88","author":"Sanson-Fisher","year":"2000","journal-title":"Cancer"},{"key":"B97","doi-asserted-by":"publisher","first-page":"1298","DOI":"10.1080\/0284186X.2019.1631471","article-title":"Impact of social support on psychosocial symptoms and quality of life in cancer patients: Results of a multilevel model approach from a longitudinal multicenter study.","volume":"58","author":"Sauer","year":"2019","journal-title":"Acta Oncol."},{"key":"B98","author":"Schulze","year":"2006","journal-title":"[Federal health survey: Social differences in smoking behavior and exposure to secondhand smoke in Germany]."},{"key":"B99","doi-asserted-by":"publisher","first-page":"1345","DOI":"10.1016\/S0959-8049(00)00447-0","article-title":"Reference data for the quality of life questionnaire EORTC QLQ-C30 in the general German population.","volume":"37","author":"Schwarz","year":"2001","journal-title":"Eur. J. Cancer"},{"key":"B100","doi-asserted-by":"publisher","first-page":"1583","DOI":"10.1001\/jama.2012.500","article-title":"The patient-centered outcomes research institute (PCORI) national priorities for research and initial research agenda.","volume":"307","author":"Selby","year":"2012","journal-title":"JAMA"},{"key":"B101","doi-asserted-by":"publisher","first-page":"1463","DOI":"10.1016\/S0277-9536(03)00349-6","article-title":"Health inequalities and the psychosocial environment-two scientific challenges.","volume":"58","author":"Siegrist","year":"2004","journal-title":"Soc. Sci. Med."},{"key":"B102","doi-asserted-by":"publisher","first-page":"2291","DOI":"10.1002\/pon.3282","article-title":"Co-morbid mental health conditions in cancer patients at working age\u2013prevalence, risk profiles, and care uptake.","volume":"22","author":"Singer","year":"2013","journal-title":"Psychooncology"},{"key":"B103","doi-asserted-by":"publisher","first-page":"1513","DOI":"10.1002\/cncr.29223","article-title":"When do we need to care about the caregiver? Supportive care needs, anxiety, and depression among informal caregivers of patients with cancer and cancer survivors.","volume":"121","author":"Sklenarova","year":"2015","journal-title":"Cancer"},{"key":"B104","doi-asserted-by":"publisher","first-page":"374","DOI":"10.1089\/jayao.2017.0103","article-title":"Frailty and comorbidities among survivors of adolescent and young adult cancer: A cross-sectional examination of a hospital-based survivorship cohort.","volume":"7","author":"Smitherman","year":"2018","journal-title":"J. Adolesc. Young Adult Oncol."},{"key":"B105","doi-asserted-by":"publisher","first-page":"1092","DOI":"10.1001\/archinte.166.10.1092","article-title":"A brief measure for assessing generalized anxiety disorder: The GAD-7.","volume":"166","author":"Spitzer","year":"2006","journal-title":"Arch. Intern. Med."},{"key":"B106","doi-asserted-by":"publisher","first-page":"257","DOI":"10.1080\/00224490903100561","article-title":"Development and bicultural validation of the new sexual satisfaction scale.","volume":"47","author":"Stulhofer","year":"2010","journal-title":"J. Sex Res."},{"key":"B107","doi-asserted-by":"publisher","first-page":"209","DOI":"10.3322\/caac.21660","article-title":"Global cancer statistics 2020: GLOBOCAN estimates of incidence and mortality worldwide for 36 cancers in 185 countries.","volume":"71","author":"Sung","year":"2021","journal-title":"CA Cancer J. Clin."},{"key":"B108","doi-asserted-by":"publisher","first-page":"385","DOI":"10.1080\/00926230591006502","article-title":"Development of a questionnaire on sexual quality of life in women.","volume":"31","author":"Symonds","year":"2005","journal-title":"J. Sex Marital Ther."},{"key":"B109","doi-asserted-by":"publisher","first-page":"229","DOI":"10.1007\/s10549-017-4290-9","article-title":"Predictors of distress in female breast cancer survivors: A systematic review.","volume":"165","author":"Syrowatka","year":"2017","journal-title":"Breast Cancer Res. Treat."},{"key":"B110","doi-asserted-by":"publisher","first-page":"1514","DOI":"10.1080\/08870446.2020.1867136","article-title":"Informal caregiver burden for solid tumour cancer patients: A review and future directions.","volume":"36","author":"Thana","year":"2021","journal-title":"Psychol. Health"},{"key":"B111","doi-asserted-by":"publisher","author":"Toussaint","year":"2020","journal-title":"Einf\u00fchrung somatoforme st\u00f6rungen, somatische belastungsst\u00f6rungen.","DOI":"10.36198\/9783838553498"},{"key":"B112","first-page":"359","article-title":"[Psychometric validation of the 8-Item short-version of the Illness-specific social support scale (ISSS) among cancer patients].","volume":"3","author":"Ullrich","year":"2010","journal-title":"Klin. Diagn. Eval."},{"key":"B113","doi-asserted-by":"publisher","first-page":"805","DOI":"10.1097\/EDE.0b013e3181577511","article-title":"Strengthening the reporting of observational studies in epidemiology (STROBE): Explanation and elaboration.","volume":"18","author":"Vandenbroucke","year":"2007","journal-title":"Epidemiology"},{"key":"B114","doi-asserted-by":"publisher","first-page":"1762","DOI":"10.1002\/pon.6018","article-title":"Influence of depression on survival of colorectal cancer patients drawn from a large prospective cohort.","volume":"31","author":"Varela-Moreno","year":"2022","journal-title":"Psychooncology"},{"key":"B115","doi-asserted-by":"publisher","first-page":"74","DOI":"10.1002\/pon.4102","article-title":"Clinically assessed posttraumatic stress in patients with breast cancer during the first year after diagnosis in the prospective, longitudinal, controlled COGNICARES study.","volume":"26","author":"Voigt","year":"2017","journal-title":"Psychooncology"},{"key":"B116","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpsychores.2020.110218","article-title":"Different independent associations of depression and anxiety with survival in patients with cancer.","volume":"138","author":"Walker","year":"2020","journal-title":"J. Psychosom. Res."},{"key":"B117","doi-asserted-by":"publisher","first-page":"410","DOI":"10.1097\/PSY.0000000000000942","article-title":"Major depression and survival in people with cancer.","volume":"83","author":"Walker","year":"2021","journal-title":"Psychosom. Med."},{"key":"B118","author":"Ware","year":"1999","journal-title":"How to score and interpret single-item health status measures: A manual for users of the SF-8TM health survey."},{"key":"B119","doi-asserted-by":"publisher","first-page":"2847","DOI":"10.1002\/pon.4901","article-title":"Psychosocial distress and utilization of professional psychological care in cancer patients: An observational study in national comprehensive cancer centers (CCCs) in Germany.","volume":"27","author":"Weis","year":"2018","journal-title":"Psychooncology"},{"key":"B120","doi-asserted-by":"publisher","first-page":"1445","DOI":"10.1007\/s00520-016-3541-3","article-title":"Associations between dyadic coping and supportive care needs: Findings from a study with hematologic cancer patients and their partners.","volume":"25","author":"Weissflog","year":"2017","journal-title":"Support Care Cancer"},{"key":"B121","first-page":"S178","article-title":"[Social class index in the federal health survey].","volume":"61","author":"Winkler","year":"2000","journal-title":"Gesundheitswesen"},{"key":"B122","year":"2022","journal-title":"International statistical classification of diseases and related health problems (ICD)."},{"key":"B123","doi-asserted-by":"publisher","first-page":"446","DOI":"10.1007\/s00103-022-03495-1","article-title":"[Partnership and family aspects of cancer].","volume":"65","author":"Zimmermann","year":"2022","journal-title":"Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz"},{"key":"B124","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0212758","article-title":"The German version of the quality of marriage index: Psychometric properties in a representative sample and population-based norms.","volume":"14","author":"Zimmermann","year":"2019","journal-title":"PLoS One"},{"key":"B125","doi-asserted-by":"publisher","first-page":"95","DOI":"10.1080\/08964289.2011.605399","article-title":"Fear of progression in partners of chronically ill patients.","volume":"37","author":"Zimmermann","year":"2011","journal-title":"Behav. Med."}],"container-title":["Frontiers in Psychology"],"original-title":[],"link":[{"URL":"https:\/\/www.frontiersin.org\/articles\/10.3389\/fpsyg.2023.1125545\/full","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,4,20]],"date-time":"2023-04-20T14:02:08Z","timestamp":1681999328000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.frontiersin.org\/articles\/10.3389\/fpsyg.2023.1125545\/full"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,4,20]]},"references-count":125,"alternative-id":["10.3389\/fpsyg.2023.1125545"],"URL":"http:\/\/dx.doi.org\/10.3389\/fpsyg.2023.1125545","relation":{},"ISSN":["1664-1078"],"issn-type":[{"value":"1664-1078","type":"electronic"}],"subject":["General Psychology"],"published":{"date-parts":[[2023,4,20]]}}}